International Network on Chronic Pain in Childhood
Abstract
Despite the high (and growing) prevalence of CP in children, it continues to be largely unrecognized, understudied, and undertreated. Evidence-based treatment guidelines are available for adults, but treatment options for children with CP remain limited, due in large part to (1) the lack of sophistication in the patient-reported outcome measures (PROMS) used for assessing key outcomes, (2) a lack of research on (and therefore the understanding of) the factors that influence CP and its impact, and (3) the minimal access to CP specialized care for children. Research on CP in children continues to be fragmented, and there is a lack of adequate support for both research and clinical programs, particularly when compared to adults. A network identifyng specific research gaps, developing recommendations to overcome those gaps, and provide guidelines to support future research is an appropriate next step to deal with these issues. With this international interdisciplinary and collaborative network we offer to address two cross-cutting challenges. First, we propose to identify the most important outcome domains that should be assessed in paediatric pain clinical trials and identify the most appropriate PROMs. Second, we propose to develop a guide for an international registry of children with CP and develop a research protocol to study the availability of, and access to, different treatments, to help evaluate their effects as naturally provided to patients.
Keywords
Chronic Pain; Childhood; Children; Adolescents; PROMs; Registry
Call topic
Networking Chronic Pain
Proposed runtime
2023 - 2024
Project team
Jordi Miro (Coordinator)
Spain
Mary O'Keeffe
Belgium
Rikard Wicksell
Sweden
Sussie Lord
Australia
Francisco Reinoso-Barbero
Spain
Jesus Cebrecos
Spain
Julia Wager
Germany
Esther Pogatzki-Zahn
Germany (BMBF)
Chantal Wood
France
Lorezon Moscaritolo
Italy
Christina Liossi
United Kingdom
Suellen M Walker
United Kingdom
Stahl Minna
Finland
Ananda Fernandes
Portugal
Pablo Ingelmo
Canada
Allen Finley
Canada
Vina Mohabir
Canada
Inese Gobina
Latvia
Liesbet Goubert
Belgium
Helen Koechlin
Switzerland
Randi D. Andersen
Norway
Mark P. Jensen
United States of America